Oh gosh guys, my heart is aching so much for my Little man L. Why does everything that goes wrong have to be with him? I wish I could give him a break but true to his personality he is taking it all in his stride.
We had him at a Strabism Eye specialist yesterday as the Paediatrician suspected that he has a "lazy eye" due to his low muscle tone. It turns out he has many more problems than just that. His one eye is -6 - guys, the glasses for that is like a coke bottle bottom. He had us looking through it to see how much he can actually see with that eye - like nothing! Just a blur of colour. His other eye is perfect. He also has the "sleeves" that cover the nerves to the retina growing over the retina and blocking about a third of the retina. This is the opposite of what happens to Hipotonic children - their "sleeves" stop too short and have to grow. We now have to take him to a retina specialist to confirm this. The course of action is glasses - they can only correct to a -3 as the correction is too big and the glasses will be too heavy for him. He will then be monitored to see if there is any improvement as well as if the nerves grow into the sleeves or they recede.
I will know more on Friday, but for now the challenge is to get a 15 month old to wear glasses and to stop his twin brother from pulling them off. As preparation while his glasses are being made, we are all wearing our glasses at home to show him that it is pretty normal to wear glasses. When he is older he will be able to wear one contact lens, but the doctor can really not predict what will happen in future. At least we know he has one good eye!
If I can once more ask your prayers for God to heal his eye, to rectify the retina. I know that a lot of children are dying and very sick (please continue praying for little Tuesday as I am), blind etc, but I also know that God in His grace can heal in infinite grace. Thanks for your love and support!